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Biobanks : governance in comparative perspective
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Biobanks : governance in comparative perspective

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Contents

Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen
Biobanks in action : new strategies in the governance of life / Herbert Gottweis
The rise and fall of a biobank : the case of Iceland / Gísli Pálsson
Estonia : ups and downs of a biobank project / Rain Eensaar
Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer
"This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider
Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher
Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis
UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen
Biobanks and the biopolitics of inclusion and representation / Richard Tutton
The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken
Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen
Governing through biobanks : research populations in Israel / Barbara Prainsack.

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Biobanks : governance in comparative perspective. ISBN 9780203927991. Published by Routledge in 2008. Publication and catalogue information, links to buy online and reader comments.

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