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Disclosure dilemmas : ethics of genetic prognosis after the 'right to know/not to know' debate
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Disclosure dilemmas : ethics of genetic prognosis after the 'right to know/not to know' debate

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Includes bibliographical references and index.

Contents

The right to know, and the right not to know : ten years on / Ruth Chadwick
Genetic counseling : placing the room in context / Barbara Katz Rothman
Genetic counselling : clinical settings and constraints / Hansjakob Müller
Prevention of harmful false diagnosis versus threat by disclosure of an inheritable disease : a medical case / David Winkler and Philippe Lyrer
Communication yes, but how : and what? Commentary to the case presented by David Winkler and Philippe Lyrer / Christoph Rehmann-Sutter
The need for an ethics of kinship : decision stories and patients' context / Rouven Porz
Testing for susceptibility genes : a cautionary tale / Margaret Lock
'If only I had (not) known that' : about risk-individualisation, chance-specification, and the loss of certainty of not-knowing / Tjeerd Tymstra
The symbolic fallout of gene talk : replacing the person with manageable constructs / Silja Samerski
Predictive genetic testing of adolescents at risk of inherited arrhythmic death / Jane Kaye, Michael Parker and Edward Blair
How legal frameworks construct patterns of liability in genetic counseling : an international perspective / Daniel Wied, Susanne Listl, and Maximilian Seibl
Responsibility towards relatives / Michael Steel
Careful communication of 'bad news' : the cancer experience / Wolf Langewitz
The responsibility of the truth-teller / Thomas Cerny
Practising informed choice : decision making and prenatal risk assessment : the Danish experience / Nete Schwennesen, Lene Koch, and Mette Nordahl Svendsen
Receiving and interpreting information : a joint enterprise / Jackie Leach Scully
Without disclosure, no informed choice / Peter Miny
Allowing agency : an ethical model for communicating personal genetic information / Christoph Rehmann-Sutter.

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Disclosure dilemmas : ethics of genetic prognosis after the 'right to know/not to know' debate. ISBN 9780754674511. Published by Ashgate in 2009. Publication and catalogue information, links to buy online and reader comments.

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